My Journey to Dysautonomia
I didn’t wake up one day and get diagnosed with dysautonomia.
It was more like… my body started leaving clues years ago, and I kept collecting them like puzzle pieces I couldn’t make sense of yet. Some were loud. Some were subtle. Most were brushed off. And for a long time, I learned to live in the in-between… the space where you know something is wrong, but you can’t prove it in one appointment.
The early years… when “tired” wasn’t just tired.
I’ve had asthma since I was a kid, so “breathing stuff” was always part of my life. But as I got older, it wasn’t just my lungs. It was fatigue that didn’t match my life. Pain that moved around. GI problems that were hard to explain. Days where I felt like I needed multiple naps just to function…
My Journey to Dysautonomia
I didn’t wake up one day and get diagnosed with dysautonomia.
It was more like… my body started leaving clues years ago, and I kept collecting them like puzzle pieces I couldn’t make sense of yet. Some were loud. Some were subtle. Most were brushed off. And for a long time, I learned to live in the in-between… the space where you know something is wrong, but you can’t prove it in one appointment.
The early years… when “tired” wasn’t just tired.
I’ve had asthma since I was a kid, so “breathing stuff” was always part of my life. But as I got older, it wasn’t just my lungs. It was fatigue that didn’t match my life. Pain that moved around. GI problems that were hard to explain. Days where I felt like I needed multiple naps just to function…
"It's okay to be grateful for the medical technology that saves you and still hate that you need it."
"It's okay to be grateful for the medical technology that saves you and still hate that you need it."
Browse My Posts
The Quiet Collapse
It’s Monday afternoon, and the house is quiet in a way that would normally feel peaceful… but it doesn’t. The kids left for school after
The Door That Finally Opened
This morning, I felt like I was standing in front of a door locked for years, hand on the knob, bracing myself for what might
I’m Not Just Tired… I’m Carrying Too Much
The word “tired” doesn’t fully express my feelings, despite my repeated use of it. Tiredness has taken over my body. Exhaustion derives from pain; it
I’m Existing
I’m Existing This seems to be a common thing lately. There is no hiding it. There is no faking it. Living like this for so
Starting the Year in Survival Mode
New year is coming in strong… and not in the cute, glittery way people post about. We went to bed minutes after midnight. The house
Not a Virus. A Flare.
I know this now with certainty… this isn’t a virus. This isn’t an infection. This isn’t something my body is fighting off. This is my
Browse My Posts
The Quiet Collapse
It’s Monday afternoon, and the house is quiet in a way that would normally feel peaceful… but it doesn’t. The kids left for school after
The Door That Finally Opened
This morning, I felt like I was standing in front of a door locked for years, hand on the knob, bracing myself for what might
I’m Not Just Tired… I’m Carrying Too Much
The word “tired” doesn’t fully express my feelings, despite my repeated use of it. Tiredness has taken over my body. Exhaustion derives from pain; it
I’m Existing
I’m Existing This seems to be a common thing lately. There is no hiding it. There is no faking it. Living like this for so
Starting the Year in Survival Mode
New year is coming in strong… and not in the cute, glittery way people post about. We went to bed minutes after midnight. The house
Not a Virus. A Flare.
I know this now with certainty… this isn’t a virus. This isn’t an infection. This isn’t something my body is fighting off. This is my
New Here?
Hello! As a wife and mother of two daughters, I live with a feeding tube, Dysautonomia, and multiple chronic diseases. Here, I share the messy, real, and hopeful moments of juggling marriage, motherhood, and my health. If you need solidarity, tube advice, or understanding, you've come to the right spot.
Dysautonomia Resources
Stop Googling in the dark. Access my curated collection of reliable Dysautonomia guides, patient advocacy links, and support group information to help you manage your health with confidence.
My Toolkit
The gear I swear by. From feeding tube accessories to symptom management tools and my must-have Starbucks drink, browse the things that help me thrive despite the diagnosis.
