My Journey to Dysautonomia
I didn’t wake up one day and get diagnosed with dysautonomia.
It was more like… my body started leaving clues years ago, and I kept collecting them like puzzle pieces I couldn’t make sense of yet. Some were loud. Some were subtle. Most were brushed off. And for a long time, I learned to live in the in-between… the space where you know something is wrong, but you can’t prove it in one appointment.
The early years… when “tired” wasn’t just tired.
I’ve had asthma since I was a kid, so “breathing stuff” was always part of my life. But as I got older, it wasn’t just my lungs. It was fatigue that didn’t match my life. Pain that moved around. GI problems that were hard to explain. Days where I felt like I needed multiple naps just to function…
Real life with chronic illness, a feeding tube, motherhood, faith, and the hope that stays.
My Journey to Dysautonomia
I didn’t wake up one day and get diagnosed with dysautonomia.
It was more like… my body started leaving clues years ago, and I kept collecting them like puzzle pieces I couldn’t make sense of yet. Some were loud. Some were subtle. Most were brushed off. And for a long time, I learned to live in the in-between… the space where you know something is wrong, but you can’t prove it in one appointment.
The early years… when “tired” wasn’t just tired.
I’ve had asthma since I was a kid, so “breathing stuff” was always part of my life. But as I got older, it wasn’t just my lungs. It was fatigue that didn’t match my life. Pain that moved around. GI problems that were hard to explain. Days where I felt like I needed multiple naps just to function…
"It's okay to be grateful for the medical technology that saves you and still hate that you need it."
"It's okay to be grateful for the medical technology that saves you and still hate that you need it."
Browse My Posts
Maybe She Isn’t Gone. Maybe She’s Tired.
Chronic illness does not just take physical strength. Sometimes it quietly takes pieces of your personality too. This is about grieving the version of myself I used to be, missing the loud, silly, spontaneous girl I once was, and learning to believe she may not be gone… maybe she is just tired.
Compassion Still Needs Limits
A raw reflection on parenting with chronic pain, trying to stay compassionate, and learning that loving my kids does not mean pretending my own limits do not exist.
Somewhere Between the Pain and the Promise
A reflection on chronic illness, motherhood, marriage, and the strange beauty of standing inside an answered prayer while still hurting.
The Weight I Finally Set Down
I did it today. I parked a couple of blocks away from where I wanted to go, and standing there beside my car, I had
The Best Pretender I Know
A friend left town today. I don’t know if it’s permanent or just for a period of time… and I’m not sure what to do
When Adaptation Feels Like Grief
After everything I already shared about finally having that validating pain management appointment and getting the TAP block, I wanted to give a more current
Browse My Posts
Maybe She Isn’t Gone. Maybe She’s Tired.
Chronic illness does not just take physical strength. Sometimes it quietly takes pieces of your personality too. This is about grieving the version of myself I used to be, missing the loud, silly, spontaneous girl I once was, and learning to believe she may not be gone… maybe she is just tired.
Compassion Still Needs Limits
A raw reflection on parenting with chronic pain, trying to stay compassionate, and learning that loving my kids does not mean pretending my own limits do not exist.
Somewhere Between the Pain and the Promise
A reflection on chronic illness, motherhood, marriage, and the strange beauty of standing inside an answered prayer while still hurting.
The Weight I Finally Set Down
I did it today. I parked a couple of blocks away from where I wanted to go, and standing there beside my car, I had
The Best Pretender I Know
A friend left town today. I don’t know if it’s permanent or just for a period of time… and I’m not sure what to do
When Adaptation Feels Like Grief
After everything I already shared about finally having that validating pain management appointment and getting the TAP block, I wanted to give a more current
New Here?
Hello! As a wife and mother of two daughters, I live with a feeding tube, Dysautonomia, and multiple chronic diseases. Here, I share the messy, real, and hopeful moments of juggling marriage, motherhood, and my health. If you need solidarity, tube advice, or understanding, you've come to the right spot.
Dysautonomia Resources
Stop Googling in the dark. Access my curated collection of reliable Dysautonomia guides, patient advocacy links, and support group information to help you manage your health with confidence.
My Toolkit
The gear I swear by. From feeding tube accessories to symptom management tools and my must-have Starbucks drink, browse the things that help me thrive despite the diagnosis.
