My Journey to Dysautonomia
I didn’t wake up one day and get diagnosed with dysautonomia.
It was more like… my body started leaving clues years ago, and I kept collecting them like puzzle pieces I couldn’t make sense of yet. Some were loud. Some were subtle. Most were brushed off. And for a long time, I learned to live in the in-between… the space where you know something is wrong, but you can’t prove it in one appointment.
The early years… when “tired” wasn’t just tired.
I’ve had asthma since I was a kid, so “breathing stuff” was always part of my life. But as I got older, it wasn’t just my lungs. It was fatigue that didn’t match my life. Pain that moved around. GI problems that were hard to explain. Days where I felt like I needed multiple naps just to function…
My Journey to Dysautonomia
I didn’t wake up one day and get diagnosed with dysautonomia.
It was more like… my body started leaving clues years ago, and I kept collecting them like puzzle pieces I couldn’t make sense of yet. Some were loud. Some were subtle. Most were brushed off. And for a long time, I learned to live in the in-between… the space where you know something is wrong, but you can’t prove it in one appointment.
The early years… when “tired” wasn’t just tired.
I’ve had asthma since I was a kid, so “breathing stuff” was always part of my life. But as I got older, it wasn’t just my lungs. It was fatigue that didn’t match my life. Pain that moved around. GI problems that were hard to explain. Days where I felt like I needed multiple naps just to function…
"It's okay to be grateful for the medical technology that saves you and still hate that you need it."
"It's okay to be grateful for the medical technology that saves you and still hate that you need it."
Browse My Posts
The Weight I Finally Set Down
I did it today. I parked a couple of blocks away from where I wanted to go, and standing there beside my car, I had
The Best Pretender I Know
A friend left town today. I don’t know if it’s permanent or just for a period of time… and I’m not sure what to do
When Adaptation Feels Like Grief
After everything I already shared about finally having that validating pain management appointment and getting the TAP block, I wanted to give a more current
Today Was About Everything
Today isn’t about one thing. Today is about everything. It’s about how quickly a day can become a weight too heavy to carry with two
Third Time Through These Doors
There’s something surreal about walking into the same hospital for the third time in a row… not because it’s unfamiliar, but because it’s too familiar.
The Belinda Moment
For Valentine’s Day, my husband and I took a small weekend away to go to a concert. The show wasn’t until Saturday night, so we
Browse My Posts
The Weight I Finally Set Down
I did it today. I parked a couple of blocks away from where I wanted to go, and standing there beside my car, I had
The Best Pretender I Know
A friend left town today. I don’t know if it’s permanent or just for a period of time… and I’m not sure what to do
When Adaptation Feels Like Grief
After everything I already shared about finally having that validating pain management appointment and getting the TAP block, I wanted to give a more current
Today Was About Everything
Today isn’t about one thing. Today is about everything. It’s about how quickly a day can become a weight too heavy to carry with two
Third Time Through These Doors
There’s something surreal about walking into the same hospital for the third time in a row… not because it’s unfamiliar, but because it’s too familiar.
The Belinda Moment
For Valentine’s Day, my husband and I took a small weekend away to go to a concert. The show wasn’t until Saturday night, so we
New Here?
Hello! As a wife and mother of two daughters, I live with a feeding tube, Dysautonomia, and multiple chronic diseases. Here, I share the messy, real, and hopeful moments of juggling marriage, motherhood, and my health. If you need solidarity, tube advice, or understanding, you've come to the right spot.
Dysautonomia Resources
Stop Googling in the dark. Access my curated collection of reliable Dysautonomia guides, patient advocacy links, and support group information to help you manage your health with confidence.
My Toolkit
The gear I swear by. From feeding tube accessories to symptom management tools and my must-have Starbucks drink, browse the things that help me thrive despite the diagnosis.
